New Feature Empowers People to Impact Discovery Even More Directly

When scientific studies are representative of people’s lives, then the discoveries that result will be more broadly applicable to and successful for all. This means we, as study participants and partners, must be able to engage directly with researchers while preserving our privacy. We’re excited to share a new LunaDNA innovation that achieves just that. 

The traditional study protocol lacks direct participant engagement and thus limits high-quality, long term data collection, restricts invitations to new studies and clinical trials, and jeopardizes the preservation of personal data privacy. Often, researchers resort to gathering retrospective, fragmented data which misses the critical context of lived experiences of those managing a health condition. Through Luna, we are enabling people to share what their needs and priorities are for improving health and enabling researchers to react to what they are learning, and nimbly adjust their data collection to dig deeper in areas that are showing significant importance. 

With study participants more directly involved, researchers can follow up with them to ask for additional information to augment their study, invite them to join new studies and clinical trials, remind them to complete study requests, and share insights from their analyses. 

The ability to dynamically reconnect with study participants while they maintain their anonymity is a challenging problem for most platforms because they were not built in a participant-centered manner.  LunaDNA was built with privacy-by-design and with individual data control compliant with modern consumer privacy laws like General Data Protection Regulation (GDPR) and California Consumer Privacy Act (CCPA). LunaDNA enables an intricate connection of participants and their shared data that protects the participants’ privacy, secures their health data, but also enables the possibility of privacy-protected communication between researchers and participants. 

What can participants expect?  

People control which researchers can contact them based on the communities and studies they join. They can also choose to allow any researchers to contact them, which provides them with opportunities to join studies and clinical trials. When a researcher contacts them, individuals receive an email from LunaDNA informing them they have a message in their account. Once they login, they can access the researcher’s message in their notification center.

To drive better health breakthroughs faster, people must be at the center of research, working alongside researchers to find the answers to our greatest health questions. Recontact Agent™ is one of many LunaDNA solutions that are reshaping the way research is done. Sign up for LunaDNA today to join the community-breaking barriers in research. Already a member? Log in to your secure account to ensure you’re leveraging Recontact Agent™ to directly contribute to health discovery.    

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LunaPBC Named 2019 World Economic Forum’s Tech Pioneer

We’re thrilled to announce that the World Economic Forum (WEF) today named LunaPBC™, the public benefit corporation behind LunaDNA™, one of its newest Technology Pioneers — ahead of hundreds of up-and-coming tech companies, worldwide. This designation globally recognizes LunaPBC as a startup breaking health data barriers towards the goal of accelerating health discovery through people-powered research.

Medical breakthroughs and improving quality of life depend on comprehensive, continuous, real-world health data organized to support medical discovery. People are the best curators of their health data, and we need them as partners in research,” said Dawn Barry, president and co-founder, LunaPBC. “This model brings together social responsibility with technology for real-world, frictionless, passive information capture. We can imagine research as a continuous relationship versus a moment in time transaction.”

WEF was established in 1971 as an International Organization for Public-Private Cooperation, engaging the foremost political, business and other leaders of society to shape global, regional and industry agendas.

Since 2000, WEF established the Technology Pioneer community to recognize early to growth-stage companies from around the world that are making waves in the design, development, and deployment of new technologies and innovations, and are positioned to have a significant impact on the world. With this designation, LunaPBC joins acclaimed Technology Pioneers, including Wikimedia, Twitter, Spotify, Google and AirBnB.

LunaPBC is now immersed into WEF’s events and initiatives, where we’ll be at the center of cutting-edge insights and novel perspective in world-changing discussions. From July 1 to July 3, Bob Kain will be in Dalain, China, participating in the WEF Annual Meeting of the New Champions. There, he’ll be discussing the impact of ground-breaking genetics and molecular science related to human longevity in a session entitled, “What If: You Could Live to 150?”. Select awardees will also attend the January 2020 Annual Meeting in Davos, Switzerland to continue contributing to WEF initiatives over the next two years.

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LunaPBC team from left to right: James White, Thomas Rodriguez, Debora Thompson, Kirby Bloom, David Lewis, Dawn Barry, Bob Kain, Scott Kahn, Alexandria Leonidova, Bojil Velinov, Mayank Tyagi, Genevieve Lopez
Bob Kain
Bob Kain, CEO + Co-founder at LunaPBC

This exciting news comes just one month after our funding announcement from top tier venture capitalists, including ARCH Venture Partners, Bain Capital Ventures, F-Prime Capital, Illumina Ventures, and Osage University Partners. A few months before, we proudly announced our strategic partnership with Genetic Alliance, the world’s leading nonprofit health advocacy group committed to transforming health research for individuals and communities.

We’re only halfway through  the year and together we’re already paving global paths in health research. WEF’s Technology Pioneer 2019 award is a reminder of the strides we’re making as a community directly contributing to health discovery. Thank you for being a part of this journey with us at LunaDNA.