Ysabel Duron, Founder of the Latino Cancer Institute, Honors Her Heritage During National Hispanic Heritage Month


Growing up in Salinas, California, Ysabel Duron recalls her family was one of the few Mexican families in a small town of 30,000 people. There, she learned the importance of heritage and how culture shapes who we are as individuals. Today, Duron is an award-winning journalist, cancer survivor, and founder of The Latino Cancer Institute in San Jose, California. To help achieve those goals, LCI is working with Luna to host its community on the platform.

Ysabel Duron founded The Latino Cancer Institute after her own cancer diagnosis. The TLCI operates as a “science meets service” framework.

Duron was inspired to establish the organization after a diagnosis of Hodgkin’s lymphoma in 1999. Using her experience as a journalist, she documented her cancer journey in an effort to raise awareness about the disease.

The Institute is a national network of nonprofit cancer service agencies, dedicated to the promotion of education, research, and policy that diminishes the cancer burden in the Latino community. Because of her work, Duron has received the Living Legacy Award from the Chicana/Latina Foundation.

In honor of National Hispanic Heritage Month, Duron shared how her childhood in California and cancer journey inspired her to serve her community by advancing Latina cancer research, education, and advocacy.

Tell us about your work at The Latino Cancer Institute.

The Latino Cancer Institute (TLCI or The Institute) operates from a framework of “science meets service” and proposes to act as a connector, convener, and advocate for patients and stakeholders, who address health disparities throughout the cancer landscape. The goals of TLCI evolved from community-based work where we learn about gaps in services and barriers to care by engaging directly with and in the community, with cancer patients and their families. This direct work has informed much of the initiative, policy, and research in which we engage today.

Tell me about your childhood and how it shaped you as an adult.

I came from the lettuce capital of the world! In Monterey County, California, Salinas was a small town but mighty for its agricultural products. My first memories are those of my mom working in the canneries to cut peaches, broccoli, and other fruits and vegetables while my dad pulled ice for the refrigerated cars that delivered produce around the country.

Our other claim to fame was the Salinas Rodeo. Every July, my brother and sisters entered the Kiddie Caper Parade that marched down Main Street, so we could earn ourselves a ticket to the ensuing carnival and rodeo show. We were one of the few Mexican families. There were two Catholic schools and two Catholic churches, but only one Mexican church where the priest spoke Spanish. There was also one Mexican movie theater, so some of us would regularly accompany our parents, or we’d get dropped off at the English language movie house, where a ticket was a quarter, and a candy bar and popcorn were five cents.

As a high school kid, I was a good student, moving in and out of the various cliques, observing people. I can’t say I was a member of the cool kids clique, but I think my journalistic instincts were already at work, my imagination fed by all the books I read. It was those books at the library that nurtured my ideas of global travel, an interest in other worlds and peoples, a strong curiosity that drove me straight to journalism school out of high school and that continues to drive me in my advocacy work.

I actually don’t think one can separate heritage from one’s natural being; it is culture, values, and traditions. Heritage is a core part of who I am.

Ysabel Duron

Was there a particular person who inspired you growing up?

The concept of a mentor was not a widely known or discussed figure when I was growing up. I would say I had role models who, in bits and pieces, touched my life, but two women stick out.

My high school music teacher Mrs. Solazzi, who I always remembered for telling me, “in trying to hit high C, reach above it, and you’ll land on it.” That became a metaphor for setting high goals for myself, and for even defying my mother–a huge leap for a good Mexican, Catholic school girl–by telling her I alone had the right to decide if I could go to college because I was in charge of my life. And yet, it was my mother who showed me that adversity was not a problem, just a challenge.

My mother demonstrated her ability to overcome challenges when she and a small group of Mexican families came together to raise money and build a new Mexican Catholic Church in Salinas. Salinas was a small but important agricultural town in Monterey County. Through the early 60s, my mother led a small committee to host dances, tamale feeds, and menudo breakfasts after church to raise money.

In those days, there were hardly any big foundation grants available, but there was a large imported community of braceros–Mexican labor bused in from Mexico to toil the fields. My mom said, “braceros built that church,” because it was their attendance at the dances, their stops at the church kitchen for breakfast, and their support of the queen candidates of the Fiestas Patrias (Mexican Independence Day) that provided the resources. Ultimately, they raised over $250,000, a mighty sum in the early 60s! But that church stands today as a testimony to a people’s passion for faith, culture, and language. I never forgot that lesson watching my mom lead that campaign, leaving a legacy that means so much to so many churchgoers, who will never know its history or the people who made it possible. My mom demonstrated to me the power of one, who, with determination and passion can make a difference in the life of a community.

In celebration of National Hispanic Heritage Month, what aspects of your heritage do you think have impacted your work?

I actually don’t think one can separate heritage from one’s natural being; it is culture, values, and traditions. Heritage is a core part of who I am. Though born in the U.S. in small-town America, I was distinctly Mexican, not because of language, but because of all those parts of who I am. I often saw myself as other, apart from the mostly white kids I went to school with. Someone who stood on the sideline observing bound neither in one world or the other, but defined by my olive skin and my own strong heritage, reinforced by parent modeling, Catholic school training, and my own independent spirit. It is in fact that spirit, that independence, that curiosity underpinned by core Latino values of respect (respeto), spirituality, family (familia), and a belief in service to others, that guides my work.

I am a trained journalist. I have worked in TV news for 43 years. I fulfilled that dream but took on an encore career when I was diagnosed with Hodgkin’s lymphoma. My first remark to myself upon hearing the news was, “Ok God, this isn’t about dying. What’s the point?” And my second thought was, “I wonder if I should do a story?” So, I did. During treatment in the spring of 2000, I turned the camera on myself to show my TV audience a cancer journey, the Big C. This fear haunted many communities because, at that time, cancer was shrouded in a lack of awareness and only spoken about behind closed hospital doors or in whispers. Or in the Latino community, not at all. My mantra when I launched my first nonprofit in 2001 was “talking about cancer won’t kill us, the silence will.” And I made it my mission to break that silence, to spotlight the disease, and to help patients and families find support and answers.

It took me many years of public service, as my teams built upon what we learned, addressing gaps in services, collaborating to increase research knowledge about cancer impacts on Latinos, and working to remove systems barriers to quality diagnosis and treatment. It was throughout these 22 years of public service that I realized my heritage, that culture of familia, those values of respeto, and my own spiritually-driven desire to be of value, that inspired my work.

What has been a project you’ve worked on you’ve been especially proud of?

I’ve had the good fortune to collaborate with many Latina researchers over the years. In 2016, I partnered with Laura Fejerman, PhD, who was at UCSF at the time but currently is at UC Davis. I wanted to find a way to teach the Latino community about genetics, a critical growth area of research and medical discovery.

Dr. Fejerman and I decided to focus on hereditary breast cancer and develop a toolkit that provided training for community health workers to educate and raise awareness among low-income, low-literacy, Spanish-speaking, and immigrant women. Breast cancer is the leading cause of cancer incidence and death among Latinas in the U.S. who tend to be diagnosed at later stages and experience worse outcomes.

While disparities such as access, cost, and language barriers exacerbate the problem, just as concerning are the under-researched genetic factors that compound the issue. Lack of awareness and testing contribute to Latina breast cancer health disparities. In 2020, we were ready to launch an education piece when COVID hit. Community health workers were trained online utilizing a toolkit and Tu Historia Cuenta materials, which included a family history document for the participants. The program has resulted in the education of 1,062 women, identified more than 60 women at potential risk for BRCA genetic variants, and close to 500 women who were not up to date with screenings including mammograms, pap, and colorectal tests.

Our project is far from done until we change systems and drive policies that remove barriers to equity and quality care. For now, we are proving that Latinas, especially our most vulnerable population, are open to learning about more complex scientific issues. I am proud of what we have done so far, but I am working for the day that I can put this story to bed with a solution in sight.

What advice would you give young adults who are considering a STEM career?

As a patient advocate on the Board of the California Institute for Regenerative Medicine (the Stem Cell Agency), we are committed to promoting opportunities for youth from high school to graduate school and most particularly for racial and ethnic communities under-represented in the science field. I am proud that we are dedicated to opening doors for students to join prestigious labs through major research universities, academic institutions, and even community colleges to find opportunities in this cutting-edge field.

For young adults interested in STEM careers, start finding classes in your high school that introduce you to the genome and related research. Read! Identify internships and find mentors who can advise you on the best pathway for you to test your interest and find your passion. Don’t let naysayers or fearful parents blur your vision. You could be the one who discovers the cure for cancer, Parkinson’s, or Alzheimer’s, some of our most costly diseases that touch people we love, people we know, and people who could one day be you. Research is a hard journey but an inspiring one. Every step along the way is a learning curve that hopefully will add value to what you do, and will make you feel of value to the world.

What does Hispanic Heritage Month mean to you?

Latinos in this country, who number 62 million people, represent some 22 Latin countries. What most people don’t realize is that 63% are American-born and another 10% are naturalized citizens. The largest group, Mexican Americans, who are over 60% of this diaspora, can track some of their ancestral roots in the U.S. back 500 years, long before the Pilgrims landed at Plymouth Rock. During the Chicano movement of the 70s, some used to say, ‘we didn’t cross the border, the border crossed us!’ Hispanic Heritage Month gives Latinos a chance to tell their narrative which rarely shows up in the history book. It gives us an opportunity to set the record straight about our real story, which will take a lot longer than one month to explore and explain.


About Luna

Luna’s suite of tools and services connects communities with researchers to accelerate health discoveries. With participation from more than 180 countries and communities advancing causes including disease-specific, public health, environmental, and emerging interests, Luna empowers these collectives to gather a wide range of data—health records, lived experience, disease history, genomics, and more—for research.

Luna gives academia and industry everything they need from engagement with study participants to data analysis across multiple modalities using a common data model. The platform is compliant with clinical regulatory requirements and international consumer data privacy laws.

By providing privacy-protected individuals a way to continually engage, Luna transforms the traditional patient-disconnected database into a dynamic, longitudinal discovery environment where researchers, industry, and community leaders can leverage a range of tools to surface insights and trends, study disease natural history and biomarkers, and enroll in clinical studies and trials.


Celebrating Software Engineer Oscar Garcia During National Hispanic Heritage Month


When Oscar Garcia was growing up in Tijuana, Mexico, his parents encouraged his interest in computers. Living on the border of Mexico and the United States gave Garcia a unique perspective of experiencing two melding cultures. Today, Garcia is a software engineer at Luna. In honor of National Hispanic Heritage Month, Garcia shared how he was inspired to join the STEM field of computer programming and how his heritage has shaped his career, personal life, and leadership philosophy.

Oscar Garcia developed his love of video games into a career as a software engineer.

What do you do at Luna?
I’m a software engineer. I work with the backend team to do everything on the backend of the Luna application. I work primarily with a lot of business logic, but more into why it’s happening behind the scenes. This October will mark one year for me at Luna.

Tell me about how you grew up.
I’m from Tijuana, Mexico. I was born and raised in Tijuana and have been living here for the past 27 years. Living on the border gave me the opportunity to get to know San Diego and experience both cultures. I had the unique advantage of seeing both worlds. I was very interested in pop culture and technology, including television, movies and video games.

My parents worked all day. So, as a kid, I spent a lot of time with my grandma. My parents worked hard to provide me with an education, and I was very grateful. I remember my father buying our first computer with Windows XP. That was when I started to get interested in computing. I took a computing lab in school, and my passion for computers just grew from there. Video games were a big factor in my decision to take the software development major since it was the spark that got me interested in how software was made. When I got to high school, I entered the world of programming with very simple console applications. Looking at colleges in Mexico, I looked for software development programs and decided on Cesun University. I graduated as a software engineer in 2017.

What aspects of your Hispanic heritage do you think have impacted your work at Luna?
Fellowship. Growing up here on the U.S.–Mexico border, you can see how fellowship is such an important part of the community. It’s one of the core values I’m proud of. At Luna, I want to build a team and work with my team toward a common goal. In this case, it’s building complete software at the highest standards.

What does Hispanic Heritage Month mean to you personally?
Hispanic Heritage Month is a representation of what we value as a community; that we are part of a connected group and have an important role to play together. I’m proud of my heritage and where I grew up. For me, these four weeks are a reminder and chance to tell the world that as a group, we can do amazing things. We have done amazing things.

Growing up here on the U.S.–Mexico border, you can see how fellowship is such an important part of the community. It’s one of the core values I’m proud of. At Luna, I want to build a team and work with my team toward a common goal.”

Garcia says his mother is who has inspired him to be a better person and continue despite challenges.

Was there a particular person who inspired you growing up?
My mom. She’s the person who always inspired me to be a better person. She taught me to stay humble, and that no matter how hard things get, keep pushing. Those lessons she taught me got me to where I am today as a software developer.

Is there anyone in your field who served as a mentor in your field?
I had a professor at university who inspired me to continue to pursue programming. He also kept pushing me to continue to create new goals for myself, to step out of the box, and to approach new jobs or new technologies. Looking back, I can see that I was hesitant or unsure of myself, and he kept pushing me to be more confident and try new things. I admired the knowledge he had of software development, and I looked up to him as someone I wanted to emulate. I strive to be that person who wants to mentor people and share their knowledge with others in the field.

What advice would you give to a young professional in the STEM field?
Keep working hard. Keep innovating. Don’t doubt yourself, and don’t be afraid of failing. It’s where you will learn the most. Another important piece of advice is always to keep an open mind—that’s where the greatest ideas come from. When you have an open mind, you start seeing things in different ways.


About Luna

Luna’s suite of tools and services connects communities with researchers to accelerate health discoveries. With participation from more than 180 countries and communities advancing causes including disease-specific, public health, environmental, and emerging interests, Luna empowers these collectives to gather a wide range of data—health records, lived experience, disease history, genomics, and more—for research.

Luna gives academia and industry everything they need from engagement with study participants to data analysis across multiple modalities using a common data model. The platform is compliant with clinical regulatory requirements and international consumer data privacy laws.

By providing privacy-protected individuals a way to continually engage, Luna transforms the traditional patient-disconnected database into a dynamic, longitudinal discovery environment where researchers, industry, and community leaders can leverage a range of tools to surface insights and trends, study disease natural history and biomarkers, and enroll in clinical studies and trials.