Community Driven Innovation™

Discover priorities, understand interconnections, and forecast needs with the power of real-world data

Community Driven Innovation™ (CDI) methodology optimizes and humanizes technology and techniques to uncover real-world priorities.

HOW IT WORKS

IDENTIFY

Listen as all community stakeholders – parents, patients, caregivers, experts – share their experiences on a topic or condition to scientifically aggregate learnings and eliminate group-think bias.

DESIGN

CDI applies scientific and mathematical theories to design data collection content and tools to extract structured data from real-world lived experiences.

MEASURE & IMPROVE

Extract priority topics and contextual relationships to inform study design, re-frame past findings, draft communications and resources within the community, and leverage this iterative model for ongoing learning.


Community Driven Innovation™ with BJCSF
Community Driven Innovation™ with AGSAA
Community Driven Innovation™ with PXE International
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Community Driven Innovation™ with BJCSF
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"We learned a lot of really interesting things including just how complex the symptoms are in these conditions.”

Kaitlyn Esposito, Bobby Jones Chiari & Syringomyelia Foundation
Community Driven Innovation™ with AGSAA
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“It’s going to be useful to them [drug industry partners] to have an understanding of the types of functional outcomes and issues that our families face both so that we can design clinical trials that measure things of importance to the community and for use for us to advocate to regulatory agencies.”

Patrick Winters, Aicardi-Goutieres Advocacy Association
Community Driven Innovation™ with PXE International
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“We have a couple of clinical trials…and the FDA wants to see - what do people care about, what are the functional biomarkers that make a difference if we are going to be using a drug - and CDI starts to get us to that point.”

Sharon Terry, PXE International
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Community Driven Innovation, the new participant-centered methodology that optimizes and humanizes technology to accelerate research with real-world data shared from lived experiences.

PRODUCT SHEET

WHITE PAPER – Coming Soon

CONTACT US

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Download the PDF product sheet and white paper for Community Driven Innovation.