Community Driven Innovation™
Discover priorities, understand interconnections, and forecast needs with the power of real-world data
Community Driven Innovation™ (CDI) methodology optimizes and humanizes technology and techniques to uncover real-world priorities.
HOW IT WORKS
Listen as all community stakeholders – parents, patients, caregivers, experts – share their experiences on a topic or condition to scientifically aggregate learnings and eliminate group-think bias.
CDI applies scientific and mathematical theories to design data collection content and tools to extract structured data from real-world lived experiences.
MEASURE & IMPROVE
Extract priority topics and contextual relationships to inform study design, re-frame past findings, draft communications and resources within the community, and leverage this iterative model for ongoing learning.
"We learned a lot of really interesting things including just how complex the symptoms are in these conditions.”
“It’s going to be useful to them [drug industry partners] to have an understanding of the types of functional outcomes and issues that our families face both so that we can design clinical trials that measure things of importance to the community and for use for us to advocate to regulatory agencies.”
“We have a couple of clinical trials…and the FDA wants to see - what do people care about, what are the functional biomarkers that make a difference if we are going to be using a drug - and CDI starts to get us to that point.”
Community Driven Innovation, the new participant-centered methodology that optimizes and humanizes technology to accelerate research with real-world data shared from lived experiences.
WHITE PAPER – Coming Soon
Download the PDF product sheet and white paper for Community Driven Innovation.