In March 2020, LunaDNA, in partnership with Genetic Alliance, opened a COVID-19 study to gather physical and mental wellness information directly from individuals during the global pandemic. As of today, individuals from across the country and beyond have submitted over 187,000 survey responses revealing some remarkable early insights that have been presented to noteworthy science organizations. The study is still open and all are welcome and encouraged to share their experience to build a representative body of knowledge.
Early data shows that, of all survey respondents, one in six has taken a COVID-19 test and nearly one-third tested positive. Additionally, those 45 years of age and older were 4.3x more likely to test positive for the virus than those younger than 45, and those 65 years of age and older were 3.5x more likely to test positive than those between the ages of 24 to 44.
Other preliminary insights from the survey data reveal testing expectations and anxiety level for respondent’s who have been diagnosed with COVID-19. The infographic below highlights the key findings.
Different than many institutional studies, the LunaDNA COVID-19 Study gives people and communities the tools to capture their lived experience during this unique time, recognizing that each person, community, and geography is impacted differently and will likely experience different long-term effects.
Sharon Terry, COVID-19 Study partner and CEO and President of Genetic Alliance, presented these early insights to the National Academy of Medicine’s (NAM) Standing Committee on Emerging Infectious Diseases and 21st Century Health Threats.
“This study is conducted by the people, for the people, and in collaboration with various communities. This inclusive approach has garnered broad appreciation both for its ability to incorporate real-world experiences but also because it’s empowering people to have a voice in what will not be a one-size-fits-all solution to COVID-19. We are responding to NAM’s recommendation to expand to at-risk individuals such as those in nursing homes and detention centers. When unique voices and experiences are represented, researchers can deliver more precise answers.”
COVID and Communities
LunaPBC, the public benefit corporation behind the LunaDNA platform, is collaborating with various community groups to support privacy-protected COVID-19 study including Genetic Alliance and Disease InfoSearch, xCures, San Diego Blood Bank, and the Propionic Acidemia Foundation. Each community’s study has a unique focus, ranging from how the virus affects cancer, genetic disorders and co-morbidities, to general data-sharing for research studies and clinical trials.
We encourage community leaders to create their own COVID-19 study program and leverage the LunaDNA infrastructure to better understand the impact of the coronavirus in their communities. Please contact us at firstname.lastname@example.org to explore your needs and goals.
The COVID-19 Study is an IRB-approved study. If you are a researcher interested in qualifying and/or quantifying the short- and long-term physical and mental impact of the coronavirus pandemic and/or COVID-19 disease, we want to meet you. The LunaDNA platform exists to bridge individuals, communities, and researchers for privacy-protected, socially responsible discovery that improves health and quality of life in local communities and beyond. The need to invite individuals into research from the safety of their home, and to incorporate their lived experience into discovery, has never been clearer. Please contact us at email@example.com.
Your Voice Matters
We invite all people over the age of 18 to join the COVID-19 Study by taking the physical and mental wellness questionnaires on LunaDNA. Together, we can surface insights to improve our current state and better prepare for future pandemics. The LunaDNA platform preserves your personal privacy, is simple to join, and is free of charge – it costs only 5 minutes of your time to contribute to valuable research. Click here to get started.