Program incorporates patient-driven study to inform research and drug development for KCNT1-related epilepsy SAN DIEGO and WASHINGTON, May 26, 2020 /PRNewswire/ — The KCNT1 Epilepsy Foundation, LunaPBC, and Genetic Alliance today announced a program to assemble a patient-led drug discovery community to study disease etiology and develop therapeutic interventions for patients with KCNT1-related epilepsy. The program is being launched in collaboration with Biogen, Inc. The […]Continue reading
Nearly 1 in 5 Americans have used a DNA test kit, according to a 2019 study conducted by The Harris Poll on behalf of public benefit company, LunaPBC™. LunaPBC, the parent company of health data sharing platform, LunaDNA™, surveyed 2,000 adults weighted to be representative of the American adult population across various demographics including […]Continue reading
Ellis Rose Quesada is a 9-year-old girl who can captivate a room full of strangers. But her spontaneous performances and spunky dance moves aren’t the only features that make this little girl unique. Ellis is living with Cystic Fibrosis (CF), an inherited life-threatening condition with an average life expectancy of 37 years old. Today, Ellis […]Continue reading
LunaPBC™ has proudly promoted their chief architect to spearhead the technical and data science initiatives at the world’s first people-powered research platform, LunaDNA™ – incoming chief technology officer Kirby Bloom. Kirby has been an integral part of the strategy, design, and development of LunaDNA’s platform, having worked at the parent public benefit company, LunaPBC, since […]Continue reading
By Scott Kahn, Ph.D, Chief Information Officer at LunaPBC Using Data Privacy to Empower Health Research The importance of data security and data privacy policies have recently come under scrutiny due to revelations around Google’s Project Nightingale. The initiative with Ascension, the nation’s largest nonprofit health system, granted Google access to medical records of more than 50 […]Continue reading
Bob Kain, Chief Executive Officer at LunaPBC As we ring in the new year with health and well-being top of mind, it’s highly beneficial to proactively manage our health efforts with a complete understanding of what “good health” truly is. Some may argue that good health is the mere absence of disease or infirmity, however […]Continue reading
A new survey from LunaDNA found that two in three Americans (67%) would rather give a gift to benefit the greater good than receive a material gift for the holidays.Continue reading
By James White, VP Experience and Member Engagement How often do you test your mental and physical limits? What does that entail? As I grow older and my body and mind begin to age, I find myself asking myself these questions more often than not. Wondering how I’m growing as an individual, led me to […]Continue reading
SAN DIEGO (DECEMBER 6 2019) – Today, LunaPBC announced that LunaDNA has been selected as a winner of Connect’s Most Innovative New Product Awards. Connect, a premier nonprofit helping entrepreneurs with innovative startups in the technology and life sciences sectors, continues its thirty-two-year tradition of celebrating innovation leaders in the local San Diego community. LunaDNA is […]Continue reading
By Genevieve Lopez, Head of Digital Engagement at LunaPBC As we prepare for the fast-approaching holiday that unites families together nationwide over food, drinks, and much-awaited family connection, take advantage of the valuable opportunities while surrounded by your closest relatives – loved-ones that could be helpful in predicting and providing you identifiers of your future […]Continue reading
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