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Luna and Partners Work to Accelerate Therapies for Hunter Syndrome

January 3, 2022
We believe medical studies should be done in a truly collaborative way, where people living with the disease are treated as the experts, and researchers study the information streams that reflect the true lived experiences of the families. Advocacy organizations—the National MPS Society and Genetic Alliance—partnered with Luna to achieve…

Feature Spotlight: Member Accounts

December 2, 2021
Making what’s important to you easier to find We’ve made some changes to your member account. Now it’s easier for you to find your studies and see information from your communities and registries. Member Dashboard View tasks like “Contribute Data” ready for you to complete Access studies you’ve joined. You…

Family Health History Day

November 22, 2021
Why You Should Be Talking about Family Health History this Holiday Season As the year draws to a close and families gather together for the holidays, many have a lot to share for the first time in two years. One of the many conversations likely to come up is health…

How Modern Data Privacy Laws Enables Research

October 25, 2021
Now that data privacy laws have become more globally widespread, existing institutional systems for data aggregation have been slow to adapt to support general health research. In this webinar, Luna’s Chief Information and Privacy Officer, Scott Kahn, explores the common framework of General Data Protection Regulation (GDPR) and related regulations and suggests…

Celebrating Dr. Carlos Bustamante, National Hispanic Heritage Month 2021

October 13, 2021
Having a father as an infectious disease doctor brought Carlos Bustamante an early exposure to medicine. But still, Carlos always imagined he would grow up to become a lawyer. With a confident demeanor and powerful voice, Carlos could command a room. He thrived in debate club and theater classes and had been convinced since he was young that law…