The profile of genetic testing–and the resulting genetic data–has been elevated in public discussions. One reason is because of the COVID-19 pandemic, but also because of an increasing focus on data privacy and the growing belief that individuals should have control of their data.
When the Bobby Jones CSF organization was ready to conduct community-led research with and for its members, they partnered with Genetic Alliance and Luna.
A new patient-led drug discovery community aims to study a rare neurodevelopmental disorder called Aicardi-Goutières syndrome (AGS) and support the development of therapeutic treatments for this devastating disease.
My work at Luna is personal because I’ve seen the power of communities connected by, through, and for research, with amazing results. The Luna platform empowers communities to digitally mobilize, gather their health data, develop solutions to their questions, and partner with industry and researchers to find answers.
The health of your skin is impacted by a wide variety of factors and can have mild or dramatic effects on your daily life. Learn how genetics, family history, lifestyle and environmental factors affect skin health.
There is consensus that 2022 will be a busy year for data privacy experts. Many believe privacy legislation is motivated by the increasingly prevailing view that data privacy should be a human right.
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