Man checking his smart watch

Your Data Will Improve Your Life in the Very Near Future


One day in the near future, we’ll wake up in the morning and the first thing we hear will be a personal digital assistant providing us information on our relative mental and physical well being without having to ask.

Based on continuously streaming wearable or implantable device data, interactive gamified surveys on our phone, our health histories, microbiome and genome profiles, artificial intelligence algorithms will continuously monitor our health, searching for early symptoms of disease, chronic condition flare-ups, or assisting us with diet or fitness goals. Today’s data innovations are not only ground-breaking, they’re life-changing.  

Artificial Intelligence’s (AI) power will be unleashed when there is comprehensive, detailed, and longitudinal data available at population scale. AI combined with continuous data contributions over time, by individuals, will power discoveries for society, while also enabling personalized medicine for the individual. In the near future, complex health and medical problems will be solved at an exponentially increasing rate,  ultimately improving quality of life for all. 

But this vision of our future is not limited by technological innovation. Rather, it’s limited by people’s trust or lack thereof in any organization working to collect comprehensive individual data. How many people will willingly and continuously contribute detailed personal health & medical data to organizations that they don’t have a deep, trusting relationship with? And consumer trust can only be earned by enabling individuals to control their data, know when and how their data is being used, and share in any windfall gains earned from the data.

That’s why the public benefit corporation, LunaPBC, founded the LunaDNA Platform, a data-sharing and research discovery platform. Anyone and everyone can remotely, digitally, and easily participate in science, with privacy protection, full data control (consistent with CCPA & GDPR), as well as transparent operations. LunaDNA is accelerating medical breakthroughs by advancing people from subjects of research to partners in discovery. Through this community data-driven discovery, the most important questions are answered, the right problems are solved, and people’s lived experiences are included in cutting-edge studies and trials.

Luna is bringing together individuals, communities, and researchers to better understand life. The more we come together to contribute health data for the greater good, the quicker and more efficient research will scale, and improve the quality of life for us all.

Directly drive health discovery by joining the Tell Us About You study.


About Luna

Luna’s suite of tools and services connects communities with researchers to accelerate health discoveries. With participation from more than 180 countries and communities advancing causes including disease-specific, public health, environmental, and emerging interests, Luna empowers these collectives to gather a wide range of data — health records, lived experience, disease history, genomics, and more – for research.

Luna gives academia and industry everything they need from engagement with study participants to data analysis across multiple modalities using a common data model. The platform is compliant with clinical regulatory requirements and international consumer data privacy laws.

By providing privacy-protected individuals a way to continually engage, Luna transforms the traditional patient-disconnected database into a dynamic, longitudinal discovery environment where researchers, industry, and community leaders can leverage a range of tools to surface insights and trends, study disease natural history and biomarkers, and enroll in clinical studies and trials.


Bob Kain

Bob Kain

Executive Chairman of the Board + CO-FOUNDER

Bob was Illumina’s Chief Engineering Officer and, during his 15-year tenure, helped grow the Company from a 30-person startup to a global genomics leader of 3,000 employees at $1.5 billion in revenue.


Stressed woman wearing surgical mask

Know Your Health: Is Anxiety Genetic?

By LunaDNA Contributing Writer 


Many people experience anxiety during their lifetime. However, anxiety is not normal if it takes over your life.

A genetic predisposition for anxiety can trigger an over-the-top response to a low-key event. There are many risk factors for anxiety disorders including genetics, personality, brain chemistry, and external influences.  

Learn more about anxiety, including:   

Generalized Anxiety Disorder 

Generalized anxiety disorder is a chronic condition characterized by incessant and excessive worrying. A person with this disorder expects the worst, even when there is no plausible reason to do so. Feeling anxious for no reason is a common sentiment for those with this condition.  

According to the National Institute of Mental Health, generalized anxiety disorder sometimes runs in families. It’s unknown why some family members have it while others do not. The specific cause is unknown, but it is suspected that it’s a combination of family history, biological factors, and stressful life experiences.  

Symptoms may include: 

  • worrying too much
  • feeling nervous
  • feeling restless
  • difficulty concentrating
  • being easily startled
  • having insomnia
  • feeling exhausted
  • feeling irritable
  • sweating
  • feeling light-headed
  • feeling out of breath
  • difficulty swallowing
  • trembling
  • having to go to the bathroom frequently
  • having headaches
  • having stomach aches

Treatment by a doctor may include therapy and/or medication. 

Panic Disorder & Panic Attacks 

Panic attacks are recurring sudden attacks of terror that often come with debilitating physical symptoms. The episodes can last minutes or hours. A trigger may bring on the attacks, but often they arise for seemingly no reason. Symptoms include accelerated heart rate, trembling or shaking, having trouble breathing, sweating, feeling out of control, or feeling doomed. Because panic attacks are traumatic, some people with this disorder constantly worry when the next attack will occur and avoid places or situations. This can lead to another anxiety disorder called agoraphobia, which is the fear and avoidance of certain places or situations that might make you feel helpless or embarrassed. 

If left untreated, panic attacks can turn into a panic disorder. This occurs when a panic attack is followed up with a month or more of intense and constant worrying about the next panic attack and the fallout from it. However, not everyone that has panic attacks has a panic disorder. Treatment by a doctor for both conditions may include therapy and/or medication. 

Social Anxiety Disorder 

People with social anxiety disorder fear being in social or performance situations in which they might be judged negatively or be embarrassed. While it’s normal to get stage fright, people with this disorder tend to avoid public situations and human contact.  

Symptoms include blushing, accelerated heartbeat, sweating, trembling, nausea, lightheadedness, trouble breathing, and muscle tension. A typical response to this anxiety disorder is to avoid social situations whenever possible. Treatment by a doctor may include therapy and/or medication. 

Symptoms of Anxiety 

Although there are various types of anxiety disorders, many signs and symptoms of the types are similar including:  

  • accelerated heart rate
  • hyperventilation
  • sweating
  • shaking
  • sense of doom or panic
  • nervousness
  • restlessness
  • tension
  • tiredness
  • difficulty concentrating
  • insomnia
  • gastrointestinal issues
  • inability to stop worrying
  • having trouble controlling urge to avoid trigger events

Is Anxiety Genetic? 

Several parts of the brain play a role in fear and anxiety, so its genetic connections are complex. Through continued research, collecting data, and by learning more about how the brain functions in particular anxiety disorders, researchers can help create better treatments.  

Anxiety can be triggered by certain external events, and people with certain predispositions may be wired to react anxiously. It is possible that both genetic and environmental factors contribute to an anxiety disorder.  

While the link between genetics and anxiety is still unclear, it has been shown that anxiety disorders run in families. Genetically-linked brain disorders are complex, and more research needs to be done to truly understand whether or not anxiety is hereditary. 

Anxiety Diagnosis  

Diagnosing anxiety can be complex, so it is important to see a doctor or psychiatrist to get properly evaluated. A doctor may start with a physical exam to see if there is an underlying condition causing the anxiety. Laboratory testing of blood and urine samples may also be needed to rule out other possible causes. The doctor will look at medical history and ask questions to determine the proper diagnosis. If you experience some or all of the symptoms of anxiety, consult your physician. 

Treatments for Anxiety 

Treatments for anxiety vary largely based on the type of anxiety, root cause, and each individual’s situation and symptoms. A doctor decides how to treat patients based on what they need to function better in daily life. Two primary avenues of treatment are most common: recommended therapy to relieve stress and the use of anti-anxiety medication. Depending on the severity of an individual’s anxiety, a physician may recommend both therapy and medication as the best treatment.  

The field of pharmacogenomics, the study of how gene’s affect drug response, is making great strides in identifying which medications and dosages work better based on a patient’s genetic makeup. However, more research is needed to understand exactly how genetics plays a role in anxiety disorders and brain chemistry. As research continues, meaningful scientific breakthroughs will lead to better prevention and treatment of anxiety disorders. 

Luna is bringing together individuals, communities, and researchers to better understand life, including genetic traits like anxiety. The more we come together to contribute health data for the greater good, the quicker and more efficient research will scale, and improve the quality of life for us all.

Directly drive health discovery by joining the Tell Us About You study.


About Luna

Luna’s suite of tools and services connects communities with researchers to accelerate health discoveries. With participation from more than 180 countries and communities advancing causes including disease-specific, public health, environmental, and emerging interests, Luna empowers these collectives to gather a wide range of data — health records, lived experience, disease history, genomics, and more – for research.

Luna gives academia and industry everything they need from engagement with study participants to data analysis across multiple modalities using a common data model. The platform is compliant with clinical regulatory requirements and international consumer data privacy laws.

By providing privacy-protected individuals a way to continually engage, Luna transforms the traditional patient-disconnected database into a dynamic, longitudinal discovery environment where researchers, industry, and community leaders can leverage a range of tools to surface insights and trends, study disease natural history and biomarkers, and enroll in clinical studies and trials.


Couple sleeping

Know Your Health: What Causes Snoring?

By LunaDNA Contributing Writer


Snoring occurs when air can’t flow freely through the nose and throat.

As air fights to make its way through the airways, it jangles against the tissues in the nose and throat creating a snoring sound. Learn why people snore, and what can be done about it including:

Why Do People Snore?  

People who snore often have too much tissue in their noses and throats. The snoring sound is due to tissue vibrating in the upper airway, typically during inhalation. Most people don’t know they snore until someone tells them. Signs of snoring are: waking up with a headache or dry mouth, waking up suddenly in the middle of the night (and not from a nightmare), feeling tired during the day (even if sleeping a full night), waking up coughing or wheezing, or experiencing dental issues. 

While snoring is not an illness, it can be a symptom of a serious condition called sleep apnea, a disorder characterized by labored breathing, snoring, and gasps while asleep. In sleep apnea, the neck muscles relax, and the pathway for air to get to the lungs shuts down. At that point, the brain will usually send a signal that it needs more oxygen, which wakes up the snorer.  

Often snorers, especially those with sleep apnea, are unaware they are waking up, but they feel exhausted the following morning.  

What Causes Snoring? 

About 40 percent of men and 24 percent of women are prone to chronic snoring. Possible physical reasons for snoring include being overweight, enlarged tonsils or tongue, enlarged adenoids, elongated soft palate or cleft palate, or the shape of a person’s nose or jaw. Other factors that may contribute to snoring are nasal congestion or allergies, alcohol consumption, smoking, sleeping position, and sleep deprivation.  

The following are risk factors for snoring:

  • Being a man
  • Being overweight
  • Narrow or closed off airway
  • Narrow throat
  • Elongated soft palate
  • Cleft palate
  • Enlarged adenoids
  • Deviated septum
  • Nasal congestion or allergies
  • Sleep position
  • Sleep deprivation
  • Alcohol consumption
  • Smoking
  • Having a family history of snoring or sleep apnea

Is Snoring Genetic? 

Chronic snoring isn’t necessarily genetic, but factors that contribute to snoring may have hereditary roots. Obesity, certain anatomical traits, and medical conditions like obstructive sleep apnea, can have a genetic component. These traits paired with non-genetic factors may increase a person’s risk of snoring.  

Parents that snore are three times more likely to have children that snore than parents that don’t snore. Even having a family member that chronically snores can be a contributing factor if it causes sleep deprivation (a risk factor in snoring). About 10 percent or more children snore on most nights. 

Snoring and Sleep Apnea — What Are the Signs of Sleep Apnea 

Sleep apnea is a potentially serious medical disorder that causes breathing to stop and start repeatedly throughout the night. If your parent has sleep apnea, you are at a higher risk of developing it. People with sleep apnea have an increased risk of developing insulin resistance, Type 2 diabetes, heart disease, abnormal test results on liver function tests, and complications with medications and general anesthesia.  

Types of Sleep Apnea 

There are three main types of sleep apnea:

  • Obstructive sleep apnea is the most common type of sleep apnea. This occurs when throat muscles relax to the point of hindering airflow, either by the tongue falling into the back of the throat or some other physical obstruction.
  • Central sleep apnea is the least common form of sleep apnea and occurs when the brain doesn’t send a signal to the muscles that control breathing.  
  • Complex sleep apnea syndrome is the diagnosis for people with both types of sleep apnea (obstructive and central).  

Symptoms of Sleep Apnea 

Symptoms of sleep apnea (besides loud snoring) include: 

  • Gasping for air during sleep
  • Chest pains
  • Feeling excessively drowsy throughout the day
  • Irritability
  • Chronic headaches or sore throat
  • Dry mouth after waking in the morning
  • High blood pressure

Risk factors for sleep apnea include having a heart disorder; excess weight; nasal congestion; thicker neck circumference; a narrow throat; family history of sleep apnea; use of sedatives, pain medications, or alcohol that relax throat muscles; and smoking. Anyone that smokes is three times as likely to have sleep apnea than those who have never smoked. Smoking can increase inflammation and fluid retention in the upper airway.  

Snoring Solutions and Treatment 

Treatments for snoring run the gamut from non-invasive nasal breathing strips to invasive surgical procedures. Other non-invasive home remedies include sleeping on the side instead of the back, losing weight, avoiding alcohol and smoking, and treating allergies. Treatments for snoring that may require a prescription for insurance coverage are a mouth guard or a CPAP (continuous positive airway pressure) machine that prevents airway collapse. One of the most invasive remedies is surgery to remove the excess tissue in the airway. Success rates for surgery are good, but the procedure can be painful. Surgery is rarely used to treat snoring without sleep apnea. Your doctor can determine the best treatment option for you. 

Is Snoring Curable? 

Less snoring can be achieved with behavioral changes, treatments, and remedies. A diagnosis from a doctor or a specialist, such as an otolaryngologist (ear, nose, and throat doctor) is the first step. A diagnosis holds the key to determining if snoring is the issue or if it is a symptom of another condition. 

How to Stop Snoring 

To stop snoring, you must find the right combination of strategies. Some simple remedies to try include:  

  • Avoid sleeping on the back; sleeping on the side keeps the tongue from obstructing airflow
  • Lose that weight, especially if you weren’t snoring before gaining weight
  • Don’t drink alcohol before bedtime; make sure last call is at least four hours before you go to bed
  • Get at least seven hours of sleep at night; not getting enough sleep makes muscles floppy and leads to snoring
  • Try raising the head of your bed by four inches; if this doesn’t work, try a wedge pillow next
  • Kick the pets out of bed; pet dander can irritate your nasal allergies
  • Change out the bed pillow regularly to keep dust mites (that can lead to snoring) at bay
  • Hydrate by drinking plenty of water that helps keep nasal passages moist and unclogged by keeping phlegm flowing and less sticky

Luna is bringing together individuals, communities, and researchers to better understand life, including genetic traits like snoring. The more we come together to contribute health data for the greater good, the quicker and more efficient research will scale, and improve the quality of life for us all.

Directly drive health discovery by joining the Tell Us About You study.


About Luna

Luna’s suite of tools and services connects communities with researchers to accelerate health discoveries. With participation from more than 180 countries and communities advancing causes including disease-specific, public health, environmental, and emerging interests, Luna empowers these collectives to gather a wide range of data — health records, lived experience, disease history, genomics, and more – for research.

Luna gives academia and industry everything they need from engagement with study participants to data analysis across multiple modalities using a common data model. The platform is compliant with clinical regulatory requirements and international consumer data privacy laws.

By providing privacy-protected individuals a way to continually engage, Luna transforms the traditional patient-disconnected database into a dynamic, longitudinal discovery environment where researchers, industry, and community leaders can leverage a range of tools to surface insights and trends, study disease natural history and biomarkers, and enroll in clinical studies and trials.


Woman meeting with her doctor

Understanding Your Personal and Genomic Health: An Interview with Genome Medical


A few months ago, we partnered with Genome Medical to offer LunaDNA members access to their network of clinical genomic specialists to dig deeper into their health and DNA information.

Today, we’re chatting with Sheryl Walker, MS CGC to take a deeper look into the services they offer and how understanding your genetic makeup can help kickstart your health journey.

Hi Sheryl Walker, MS CGC. Thanks for taking the time to chat with us today and share more about the amazing work you’re doing at Genome Medical. We’re excited to be partnering with you. In a nutshell, can you tell us more about Genome Medical and the services you offer to LunaDNA members?

Sheryl Walker, MS CGC, Genome Medical
Sheryl Walker, MS CGC, Genome Medical

No problem, thank you for the opportunity! Genome Medical provides genetic counseling services by phone or video to individuals in all 50 states and has professionals with expertise in multiple areas of clinical care, including cancer, cardiology, reproductive, pediatric, pharmacy, and proactive genetic testing. LunaDNA members can schedule a one-on-one genetic counseling session in any of these areas to review their personal medical history and family medical history, discuss any appropriate diagnostic genetic testing, and get answers to specific questions they may have regarding previous test results. Diagnostic genetic testing can be informative for individuals with a diagnosis to guide treatment, aid in recommendations for future care, provide risk information for relatives, and more.  

That’s wonderful. This is clearly beneficial for someone with health questions. It sounds like people can learn more about themselves and, importantly, take adequate preventative measures on their health journey. What if someone isn’t experiencing any health challenges? How might they benefit from speaking with a genetic counselor?

That is an excellent question. As researchers continue to learn about how our genes impact our health and potential for disease, and as more consumers learn about the information their genes can provide, more individuals are seeking genetic information–including those who are healthy and unaffected by disease. While a person may not currently have a disease diagnosis, testing of their genes could reveal health risks and the potential for a future diagnosis. Many genetic diseases present earlier in life or family members will show signs and symptoms of a genetic disease that is being passed through a family, but this is not always the case. Many factors influence the manifestation of disease, including environment, lifestyle, age, and genetic factors. Even individuals who currently have a clean bill of health could have a risk for hereditary disease based on their family medical history or be found to have a genetic disease predisposition that may not show signs in standard health screenings. One such example is predisposition to hypertrophic cardiomyopathy, a hereditary disease that causes thickening of the heart muscle; this would not be identified unless a person was undergoing specific cardiovascular imaging. For several hereditary disorders, such as genetic predisposition to cancer risk, there are recommended screenings and management guidelines to help prevent a diagnosis and reduce risk. All individuals can benefit from reviewing their personal and family medical history with a genetic counselor. Even individuals who have no ‘red flags’ may be interested in and potentially benefit from clinical genetic testing and proactive health screening.  

Last year, we commissioned the Harris Poll to conduct a survey across 2,000 Americans to better understand the relationship Americans have with consumer DNA test kits, including how informed they feel about how their DNA data will be used and general concerns with participation. We learned that roughly approximately one quarter of Americans are concerned about finding out they carry a genetic disease (24%) and that their insurance company could access their results (23%). What would you say to the population of people who have these concerns?

As a genetic counselor, I feel strongly that genetic testing can be extremely beneficial, but also that genetic testing is a personal choice. I have found that patients will choose to learn about genetic testing at different times in their lives (e.g. not interested in their 30’s but become interested in their 40’s) and seek different amounts of genetic information. The discussion we have in their session helps determine how they want to proceed and what is going to be most beneficial for them. I think it is good to question one’s motivations for accessing genetic information and, even more importantly, to think about how one might use this information and how they would feel if they learned they carry a genetic predisposition to disease. Genetic testing does not change what already exists in our DNA, but the knowledge can change our awareness of predisposition and health risk.  

I often hear concerns about privacy and access to genetic information. Regardless of how genetic testing is being facilitated — be it through a research study, a direct-to-consumer DNA kit, or a diagnostic laboratory — it is important to know how your information and data are handled, accessed, stored, and what legal protections exist in relation to genetic information. The Genetic Information Non-Discrimination Act (GINA), enacted in 2008, protects individuals from discrimination in health insurance and employment based on genetic test results. Some states have additional protections beyond GINA. However, the federal protections do not extend to private life insurance, disability insurance, or long-term care insurance. More information on this federal law can be found at ginahelp.org. Genetic counselors discuss this information during appointments, as it can impact decision-making about genetic testing.   

The role of the genetic counselor is to help navigate these issues and decisions and explain risks and testing in a way that’s easy to understand. Genome Medical is proud to be able to provide this type of precision medicine care in a convenient and affordable way to their patients.  

Knowledge is truly power. We often get asked, ‘Why would I use Genome Medical’s services when I can order a test on my own through companies like 23andMe and AncestryDNA?’ I’m sure you get these questions, too. How do you best answer this?

It’s important to understand the difference between consumer and diagnostic testing. While there are many different direct-to-consumer (DTC) genetic tests available that a person can order themselves, diagnostic genetic testing can only be ordered by healthcare professionals like the genetic counselors and geneticists at Genome Medical. The testing performed by consumer companies typically uses SNP (single nucleotide polymorphism) analysis that looks at predetermined sites in your genes. Most diagnostic genetic testing, however, is performed using next-generation sequencing which looks comprehensive across all sites in the genes. You can think of it this way: if one of your genes was a book, SNP analysis is like reading a single page, whereas next-generation sequencing reads the entire book cover to cover. Further, consumer tests typically do not incorporate personal medical history or family medical history in their offerings. Genetic counselors study this important information alongside diagnostic genetic test results to provide personalized insights and recommendations on health risk. Lastly, most consumer companies report extremely limited, if any, information on inherited disease risk, and, if they did report a finding (whether cancer risk-related or otherwise), the finding absolutely needs to be confirmed through diagnostic genetic testing before making any changes to medical care. If an individual has a strong family history of cancer or cardiovascular disease, they should seek genetic counseling and diagnostic genetic testing.

So, in short, there’s a significant difference. As we can imagine, your clinical team of 40+ medical geneticists, genetic counselors, primary care doctors, pharmacists, and other specialists — who can provide medical services in all 50 states — puts you at an advantage to reach a wide network of people. How soon can a member speak with one of your Genetic Counselors once they become interested?

Appointments are very convenient. We can see individuals by phone or video. Interested LunaDNA members can typically speak with a genetic counselor within 24-48 hours (limited weekend appointments are available). 

This is a great opportunity. Is there anything else that may be important for LunaDNA members to know that we may not have already covered?

As mentioned earlier, I think everyone can benefit from a thorough discussion of their personal and medical family history. However, it is important to recognize that, like other areas of medicine, genetics is subdivided into different specialties. The genetic counselors at Genome Medical have different areas of expertise, so if an individual is interested in learning more about cancer risk and discussing inherited cardiovascular diseases, this may be best addressed in two separate appointments. In order for our genetic counselors to best tailor your session to fit your specific needs, it always helps to have as much information as possible before your scheduled appointment; this can include filling out our intake survey, indicating specific questions you want to address, and uploading previous genetic test results to our portal for review. The health information in your LunaDNA account can be easily forwarded ahead of your appointment. Our medical practice is driven by our desire to provide the best genetic healthcare experience possible. We look forward to hearing from your members!  

Thanks for taking the time to chat with us, Sheryl Walker, MS CGC, and for supporting us to encourage our members to take control of their health and their data.

If you are interested in scheduling a consultation with a Genome Medical genetic counselor, you can do so here.

Interested in learning more about your personal and genomic health?


About Genome Medical
Genome Medical is a national telegenomics technology, services and strategy company bringing genomic medicine to everyday care. Through our nationwide network of genetic specialists and efficient​ Genome Care Delivery​ technology platform, we provide expert virtual genetic care for individuals and their families to improve health and well-being. We also help health care providers and their patients navigate the rapidly expanding field of genetics and utilize test results to understand the risk for disease, accelerate disease diagnosis, make informed treatment decisions and lower the cost of care. We are shepherding in a new era of genomic medicine by creating easy, efficient access to top genetic experts. Genome Medical is headquartered in South San Francisco​. ​To learn more, visit www.genomemedical.com ​and follow ​@GenomeMed.​

About the Partnership
Since our partnership in April 2020, LunaDNA members across the United States can access a network of clinical genomic specialists — including medical geneticists, genetic counselors, pharmacists, and primary care doctors — to better understand their health and DNA information.


COVID-19 Study Infographic Snippet

LunaDNA Reveals Early Insights from the COVID-19 Study


In March 2020, LunaDNA, in partnership with Genetic Alliance, opened a COVID-19 study to gather physical and mental wellness information directly from individuals during the global pandemic.

As of today, individuals from across the country and beyond have submitted over 187,000 survey responses revealing some remarkable early insights that have been presented to noteworthy science organizations. The study is still open and all are welcome and encouraged to share their experience to build a representative body of knowledge.

Early data shows that, of all survey respondents, one in six has taken a COVID-19 test and nearly one-third tested positive. Additionally, those 45 years of age and older were 4.3x more likely to test positive for the virus than those younger than 45, and those 65 years of age and older were 3.5x more likely to test positive than those between the ages of 24 to 44. 

Other preliminary insights from the survey data reveal testing expectations and anxiety level for respondent’s who have been diagnosed with COVID-19. The infographic below highlights the key findings.

COVID-19 Study Infographic Snippet
Click Image to View More Insights

Different than many institutional studies, the LunaDNA COVID-19 Study gives people and communities the tools to capture their lived experience during this unique time, recognizing that each person, community, and geography is impacted differently and will likely experience different long-term effects.

Sharon Terry, COVID-19 Study partner and CEO and President of Genetic Alliance, presented these early insights to the National Academy of  Medicine’s (NAM) Standing Committee on Emerging Infectious Diseases and 21st Century Health Threats.

This study is conducted by the people, for the people, and in collaboration with various communities. This inclusive approach has garnered broad appreciation both for its ability to incorporate real-world experiences but also because it’s empowering people to have a voice in what will not be a one-size-fits-all solution to COVID-19. We are responding to NAM’s recommendation to expand to at-risk individuals such as those in nursing homes and detention centers. When unique voices and experiences are represented, researchers can deliver more precise answers.”

COVID and Communities 

LunaPBC, the public benefit corporation behind the LunaDNA platform, is collaborating with various community groups to support privacy-protected COVID-19 study including Genetic Alliance and Disease InfoSearch, xCures, San Diego Blood Bank, and the Propionic Acidemia Foundation. Each community’s study has a unique focus, ranging from how the virus affects cancer, genetic disorders and co-morbidities, to general data-sharing for research studies and clinical trials.

We encourage community leaders to create their own COVID-19 study program and leverage the LunaDNA infrastructure to better understand the impact of the coronavirus in their communities. Please contact us at collaboration@lunadna.com to explore your needs and goals.

Answers Wanted 

The COVID-19 Study is an IRB-approved study. If you are a researcher interested in qualifying and/or quantifying the short- and long-term physical and mental impact of the coronavirus pandemic and/or COVID-19 disease, we want to meet you. The LunaDNA platform exists to bridge individuals, communities, and researchers for privacy-protected, socially responsible discovery that improves health and quality of life in local communities and beyond. The need to invite individuals into research from the safety of their home, and to incorporate their lived experience into discovery, has never been clearer. Please contact us at discovery@lunadna.com.

Your Voice Matters 

We invite all people over the age of 18 to join the COVID-19 Study by taking the physical and mental wellness questionnaires on LunaDNA. Together, we can surface insights to improve our current state and better prepare for future pandemics. The LunaDNA platform preserves your personal privacy, is simple to join, and is free of charge — it costs only 5 minutes of your time to contribute to valuable research. Click here to get started.


About Luna

Luna’s suite of tools and services connects communities with researchers to accelerate health discoveries. With participation from more than 180 countries and communities advancing causes including disease-specific, public health, environmental, and emerging interests, Luna empowers these collectives to gather a wide range of data — health records, lived experience, disease history, genomics, and more – for research.

Luna gives academia and industry everything they need from engagement with study participants to data analysis across multiple modalities using a common data model. The platform is compliant with clinical regulatory requirements and international consumer data privacy laws.

By providing privacy-protected individuals a way to continually engage, Luna transforms the traditional patient-disconnected database into a dynamic, longitudinal discovery environment where researchers, industry, and community leaders can leverage a range of tools to surface insights and trends, study disease natural history and biomarkers, and enroll in clinical studies and trials.